Comments on: Clinic Visit http://www.speed4sarah.com/clinic-visit/?utm_source=rss&utm_medium=rss&utm_campaign=clinic-visit LET'S MAKE ALS HISTORY Tue, 06 Nov 2018 20:24:48 +0000 hourly 1 http://wordpress.org/?v=3.6.1 By: Ashley Holloway http://www.speed4sarah.com/clinic-visit/#comment-1895 Ashley Holloway Wed, 27 Jul 2016 02:49:23 +0000 http://www.speed4sarah.com/?p=2251#comment-1895 Hi Sarah,
You are a damn strong woman! I am impressed with your honesty and openness about living with ALS, though I hate that you have ALS to begin with!
As a Registered and Licensed Dietitian, this post caught my attention. I know you are not currently getting a tube feeding, but was wondering if you consume or have considered consuming any oral nutrition supplements? Like Ensure, Boost, etc. Or take Juven? Only if you are interested, I would be happy to share some evidenced based research on how these over the counter oral supplements can increase lean muscle mass, reduce risks of infections, wounds, etc. You may already have a Registered Dietitian on your healthcare team, but if not, they would be a great person to add. I promise I am not trying to sell you vitamins, herbs, or anything like that, only to share legitimate info on how to keep your muscle mass up. Sincerely,
Ashley Holloway, RD, LDN

]]> By: Jamie G. http://www.speed4sarah.com/clinic-visit/#comment-1890 Jamie G. Wed, 20 Jul 2016 04:19:59 +0000 http://www.speed4sarah.com/?p=2251#comment-1890 I never comment because I’m not good with words. I grew up in Oak Park, and remember you as my classmates pretty older sister. I know Physical beauty doesn’t (or shouldn’t) matter, but with every post of a new photo that’s still the first thought that comes to my mind… Liz’s pretty older sister. Thank you for the raw honesty in your writing, and for sharing how important it is to fight for something, even when so many factors fight against you.

]]> By: Kathy R. http://www.speed4sarah.com/clinic-visit/#comment-1889 Kathy R. Tue, 19 Jul 2016 21:00:07 +0000 http://www.speed4sarah.com/?p=2251#comment-1889 My husband passed away of ALS several years ago. The thing that got me most at Clinic was the social worker. Let’s face it, we all know it is a fatal disease BUT we don’t need to hear it from them over and over. My husband’s last visit the social worker said “If you want to travel, you better being doing it now.” That upset me so much. Fortunately, the main Dr. at Clinic was awesome. Very caring and was great with the patients. I was hoping that things had changed since then. Guess not!

I love your newsletter and am astounded by your strength and grace.

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