Comments on: Here We Go

By: Nana

Nana — Thu, 03 Aug 2017 20:29:16 +0000

Your blog and your chat today gave me comfort—such normalcy midst chaos. I love you, N

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By: Chris webb

Chris webb — Wed, 02 Aug 2017 01:41:16 +0000

I deeply saddened that my husband, age 53 had no chance to medications, clinical trials etc. He was diagnosed with Bulbar ALS on 1/16/17 and passed away 5/18/17. We had our future taken away in less than 4 months. He was perfectly healthy before his diagnosis. I want to participate, I want to help but part of me is still very angry at the disease. I hope I can overcome soon so I can give back.

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By: Meg Macdonald

Meg Macdonald — Tue, 01 Aug 2017 23:56:36 +0000

Karl,
My cousin who died from ALS also lived in Switzerland. I wish you love, connection, and hope. I blog at alteringlifespectations.com. I don’t write as well as Sarah and mine is more of a photo journal of life with ALS, with my thoughts thrown in too. Sarah is my hero. She gave me hope when I was diagnosed a year ago. I wish you the best.

And congratulations to you Sarah, on your continuing success with #whatwouldyougive. You are amazing and your family is too!
Meg

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