I found your blog through Hannibal Bray. My husband, Matt White has been living with ALS for 15+ years. I cried reading your blog. I can relate to your nighttime struggles from the caregiver’s perspective. May God Bless you and your family as he has us through this horrific disease. Matt is on a ventilator and much further in his progression, but if you ever have any questions or we can assist in any way we are here.
My husband also has a Facebook page, Matt White Cure ALS Foundation.
God Bless you,
Shartrina – shartrina@gmail.com