Comments on: My Body, Myself http://www.speed4sarah.com/my-body-myself/?utm_source=rss&utm_medium=rss&utm_campaign=my-body-myself LET'S MAKE ALS HISTORY Tue, 06 Nov 2018 20:24:48 +0000 hourly 1 http://wordpress.org/?v=3.6.1 By: Christy Strobel http://www.speed4sarah.com/my-body-myself/#comment-1216 Christy Strobel Wed, 23 Sep 2015 17:17:54 +0000 http://www.speed4sarah.com/?p=1871#comment-1216 Spot on!

]]> By: Kathleen Mackenbrock http://www.speed4sarah.com/my-body-myself/#comment-1215 Kathleen Mackenbrock Wed, 23 Sep 2015 05:12:00 +0000 http://www.speed4sarah.com/?p=1871#comment-1215 This is my first time reading your blog but will be a regular from now on! You speak so eloquently. I have a slow version of ALS called Primary Lateral Sclerosis. I’m a combo of the two. Sounds crazy I know. NIH calls me upper motor neuron dominant ALS. Eventually I’ll end up the same way ALS patients do. I look at other people’s bodies the same way! I marvel that they can do so many things at one time. It’s hard to pretend to be excited when someone tells me of a new ” breakthrough ” they read about. They’re so hopeful a cure/treatment is just around the corner when I know it’s years & years away. I’m not mad at my body either. It’s trying so hard. I’m grateful for what it can still do. I don’t want to look back and not have appreciated my best days. However challenging they are. As long as I can still somewhat move (with help from walkers and wheelchairs) breath/scoot/roll/eat/chew/swallow/laugh ~ I consider these my best days. BTW are you familiar with Ellie O’Connell’s blog Have Some Decorum? Check it out! God Bless you Sarah! Your new fan, Kate

]]> By: Karen Ilmberger http://www.speed4sarah.com/my-body-myself/#comment-1214 Karen Ilmberger Tue, 22 Sep 2015 22:27:13 +0000 http://www.speed4sarah.com/?p=1871#comment-1214 Hi Sarah,

Are you in the San Francisco Bay Area? I felt compelled to share this with you because I had a mother in law with ALS & anything with hope has drawn my attention. I happen to know the person Dr. Alfred Galvez is speaking about when he was here in Pleasanton CA on 6/12/15. I’m so grateful to have captured him talking on my phone & it’s only 9 min ~

https://www.youtube.com/watch?v=JPvKGi6FEI8

There is more information I can send if you are interested. You can call me too at (510) 908-5880. I live in Castro Valley CA. Have you heard of this?

Sharing the blessing,

Karen

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