Comments on: Speed4Kevin

By: margaret

margaret — Wed, 01 Jun 2016 23:02:53 +0000

I grew up in Oak Park and still live there. I was diagnosed at Northwestern in March 2011 and can remember my first symptoms from 2009. At this point, I can barely remember life without ALS. It took me a while but I know it’s just a day at a time. I wake up stiff as a board and ready to give up. Slowly I decide that I’ll try to do a couple of things and then make up my mind about the day. Thankfully, every day so far I have decided to keep going. I am sure this is in large part due to my wonderful family who help me without making me fee like an invalid.

I admire the work that you are doing and your commitment to raising awareness and money for ALS. We all fight ALS in different ways but we share the determination to not go down without a fight and keep the hope for a cure. I hope you’re still fighting

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By: amy muiznieks

amy muiznieks — Thu, 04 Jun 2015 16:45:51 +0000

Prayers for strength and comfort for you and your family.

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By: Pam Mauro

Pam Mauro — Thu, 04 Jun 2015 16:17:45 +0000

Hi Kevin – I actually went to St. Giles grammar school with your Mom AND my connection to Sarah is that my daughter Emily is good friends with her sister Liz (also from Oak Park IL).
I am so impressed with your courage and how you articulate living with ALS as well as your drive and motivation to obliterate a nasty nasty disease thru fundraising for research. You are an example to many and your mom must be so proud of you. Please tell your mom Pam Renzi Mauro said hello and I hope to see her at our 50th reunion in October. – Take care and I’ll continue to follow you. You are a real inspiration.

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