I grew up in Oak Park and still live there. I was diagnosed at Northwestern in March 2011 and can remember my first symptoms from 2009. At this point, I can barely remember life without ALS. It took me a while but I know it’s just a day at a time. I wake up stiff as a board and ready to give up. Slowly I decide that I’ll try to do a couple of things and then make up my mind about the day. Thankfully, every day so far I have decided to keep going. I am sure this is in large part due to my wonderful family who help me without making me fee like an invalid.
I admire the work that you are doing and your commitment to raising awareness and money for ALS. We all fight ALS in different ways but we share the determination to not go down without a fight and keep the hope for a cure. I hope you’re still fighting
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