Comments on: Speed4Vivian

By: Vivian Connell

Vivian Connell — Mon, 12 Jan 2015 22:11:57 +0000

Hi, Claudia. Thanks for the words of welcome and encouragement. It’s nice to learn to value connection and support in a much more profound way. We truly are more of what we do than what we say, and the time people have taken to proffer support and to advocate for a cure – inspirational.

Thank you for taking the time to comment. I’m so glad that we all have the Internet to connect, to affirm, and to be affirmed in return. I can’t imagine how lonely it must have been for people with limited means to suffer 20 years ago and earlier. I *hope* we can all contribute to progress for treatment and cure, but I *know* we can all help each other and set positive examples for our children by living well in the time allotted to us! And that’s not nothing.

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By: Vivian Connell

Vivian Connell — Mon, 12 Jan 2015 22:06:59 +0000

Thank you for your beautiful words. I retain control over how I react to this experience – even in the end, it can’t take that choice form me. I’m going to try to model the grace I find in so many sufferers. We have a unique opportunity to live more intentionally and to pack highlights into our remaining days.

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By: Vivian Connell

Vivian Connell — Mon, 12 Jan 2015 22:04:49 +0000

Parents of TWO of my UNC Law class of 2013 had parents diagnosed within months of me. A member of our pool/YMCA board and professor at UNC was diagnosed the same month, and one of the photographers who worked with the group of students I took to D.C. last May was diagnosed this week.

So much motivation to keep building each other up and celebrating the remaining blessing of each day. Thanks so much for your welcome.

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