Comments on: Everything That I Understand http://www.speed4sarah.com/tolstoy/?utm_source=rss&utm_medium=rss&utm_campaign=tolstoy LET'S MAKE ALS HISTORY Tue, 06 Nov 2018 20:24:48 +0000 hourly 1 http://wordpress.org/?v=3.6.1 By: Ida Bianchi http://www.speed4sarah.com/tolstoy/#comment-1695 Ida Bianchi Thu, 14 Apr 2016 23:58:09 +0000 http://www.speed4sarah.com/?p=2121#comment-1695 Hi Sarah,

Good post. I know that caring is stressful on the caregivers but I am sure that it is really hard to have to need help. You seem to have a lot of grace about that but it must be really hard for someone who appears to have been fiercely independent before ALS.

My dad, who has ALS and FTD always took pride in his physical strength. Part of me hopes that the dementia he has is minimizing his awareness of his loss of strength and independence.

I wish so much that you and the others profiled on your blog didn’t have to go through this. My heart really hurts for you. If I can do anything to help raise awareness by talking about our family’s experience, please let me know.

]]> By: Sarah Coglianese http://www.speed4sarah.com/tolstoy/#comment-1694 Sarah Coglianese Thu, 14 Apr 2016 14:23:17 +0000 http://www.speed4sarah.com/?p=2121#comment-1694 Cindy! Thank you so much. Sending you a hug, so nice to see your name here.

]]> By: Cindy http://www.speed4sarah.com/tolstoy/#comment-1693 Cindy Thu, 14 Apr 2016 13:52:22 +0000 http://www.speed4sarah.com/?p=2121#comment-1693 Wow-alyce(elsener) from oprf shared your video on fb, and I had to come over here and read your blog… I don’t have ALS, I have RA and in my worst flares I’ve also felt the guilt of not being able to brush my daughters hair or teeth(and I’m a dentist!). I’ve changed everything about my life to make things easier for me-but it takes a lot of courage to come out and vocalize it. Thanks for giving ALS a voice, and I loved the video, you are just beautiful and such a great mom! I can be your cheerleader any day!
-Cindy Yingst

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