speed4sarah

LET'S MAKE ALS HISTORY

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Tag Archives: jack and scarlett

‘Tis the Season

December 24, 2015

Categories: Life | Tags: gingerbread tea party, jack and scarlett, merry christmas | Permalink

About

I was diagnosed with ALS in 2012, after a year of random falls and unexplained muscle weakness. Though I used to be a runner, I'm now in a wheelchair. I can still find the good and the funny in every day, mainly thanks to my hilarious, sweet and massively feisty 8-year-old.

Where I've Written:

Brain, Child Magazine

The New York Times

Redbook Magazine

Sweatpants & Coffee

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TAGS

accessibility a life story foundation ALS als awareness month als tdi bipap communication cure als Disability DMV driving faces of als feeling philosophical four eyes happy birthday scarlett honda odyssey icebucketchallenge jack jay smith kevin swan kindergarten lake tahoe lets make als history living with als matt bellina michele dupree mobility works morbid musings nana otto progression rob scarlett scarlett and otto sleep steve gleason team gleason tmi tortilla chips vivian connell whatwouldyougive wheelchair whining white coat affair word nerd

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